A Couple weeks ago as the weather changed from summer to fall, big sis ended up with a runny nose and coughing. Friday morning 2 days into your sis being sick you wake up with red watery eyes, and a runny nose. I still today can't believe how quick and hard this hit you. By Friday night bed time you were so congested and wheezy, We got to bed around 11pm and by 2am you were up with a fever and worse. At barely 7am I called my best friend and woke her as my car was in the shop. Kayde needed to go to emerg.
As we were called in to be assest by the triage nurse, before I even sat down with Kayde she says "Oh my listen to you lil man" and right away put on O2 stat reader...80% is what it showed..The next thing I know we are being rushed into emerg and he is put on 10L of O2. The Dr. is there waiting, He orders 15ml pregnazone and 3x Ventolin treatments every 20 mins. to try and open his airways. After all 3 treatments we tried 6L of O2 but it didn't improve his O2 stats at all.
He had a blood gas test is what they called it. They were afraid he was getting to tired to breath on his own. They said this was the best way to test his actual O2 levels in his bld. Blood O2 came back normal. Thank goodness.
X3 more treatments every 40 mins. Tried to take off O2 and stats still only came up to 83-85%.
X3 more treatments every hour. 3L of O2. Poor peanut finally after 6 treatments decided to just give up fighting the mask. O2 came up to 90 -92 %. We are being shipped to Peterborough Hospital by ambulance where there is a Peds Dr. waiting to see you.
As you can see he did not like the paramedics...:(
It's so hard as a mom to see your baby like this, it's OK peanut mommy is right here and will hold your hand the whole way.( I needed to hold his hand more then he needed to hold mine)
When we arrived we were met by the Peds Dr. who admitted you and said you were there overnight at least till you could hold your O2 levels 95% while sleeping on your own. She also ordered another 7ml of pregnazone and to continue with treatments every 3hrs.
It was not long after arriving we were up in your room..
Well I must say my poor boy, regardless of the lack of sleep you had you were defiantly feeling the effects of all the treatments and steroids. I never seen you so hyper.
Look at my peanut so tired and sleep deprived..
Can you tell he's pretty much been up since 2am and this is like 5pm..:)
Mmmm food, he decided he was hungry...
Now that his belly is full, he was finally ready for a little sleep. They will be in for us to do treatment every 3hrs. O2 stats holding 94-97 %
Well he fell asleep, but not long after being asleep his O2 stats dropped to 90% again. They put nose prongs on him and put him on 1 1/2 L of O2 for the night. The Peds Dr. came in morning to see him and said his lungs sounded better but because he need O2 all night, We will be staying again. We continued with 7ml pregnazone X2 day and treatments every 3 hrs. By late afternoon his stats were up to 95-97% again. He had a great night other then being very vocal about me waking him up every 3hrs for treatment. I felt the same way he did exhausted and just wanted to sleep. Dr. was in nice and early and gave us the OK to go home as he held his stats all night. Ya!!!
I would have never imagined and still can't believe within 24hrs of getting sick we landed in hospital for 3 days. Never in my life have I seen or heard of someone being treated so aggressively with Ventolin. It was very scary and really opened my eyes to how a lil bug can be so dangerous for my peanut. I'll pray and will do my best to keep winters nasty germs away from my boy.
Ya for Kayde!!!!! I just love that smarty pants lil smirk you give when you know you've done something new or when you decide to actually do something mommy is asking and working with you on. Way To Go Peanut!!! At 17m corrected, Saturday you showed of big time for mommy. Starting with signing your 1st 2 words together. Mommy was giving you your nightly lotion and massage, while trying to dress you and as you tried to escape putting on your jammies. I began to tickle you and you turned around and signed " More mommy" as usual mommy clapped and yelled ya Kayde and you flashed me that sweet smarty pants smirk and did it again and again..:) Not 10 mins after that your sister was eating fish crackers, you scooted right over to her and signed " more fish" Oh peanut you are such a smarty pants. I am so proud of you, but you weren't done there. To top off the night I can't believe it, you SAID your 1st 2 words together. " ta buba" The tears that came down mommy's face, tears of pure joy. You have came such a long way. There is nothing you can't do peanut, I'll be by your side every step. Thank you for being you, and giving me the best Saturday night ever!!!
Friday's are gonna be my day to share some of my ffavourite video's.( kids are giving me no time to blog..:)) I would like to say, Thank you to all the wonderful children and there mommy's and daddy's for sharing there stories. Beautiful & Inspiring
This one is one of my favs, I just love how this dad starts this video.
I just seen this video, it is also another dad video. All I can say is grab some tissue's,
TRUTH: Down syndrome is the most commonly occurring genetic condition. One in every 691 babies in the United States is born with Down syndrome, or approximately 6,000 births per year. Today, there are more than 400,000 people with Down syndrome living in the United States.
MYTH: People with Down syndrome have a short life span.
TRUTH: Life expectancy for individuals with Down syndrome has increased dramatically in recent years, with the average life expectancy approaching that of peers without Down syndrome.
MYTH: Down syndrome is hereditary and runs in families.
TRUTH: Down syndrome is hereditary in approximately 1% of all instances. In the other 99% of cases Down syndrome is completely random and the only known factor that increases the risk is the age of the mother (over 35). Translocation is the only type of Down syndrome known to have hereditary link. Translocation accounts for 3 to 4% of all cases of Down syndrome. Of those, one third (or 1% of all cases of Down syndrome) are hereditary.
MYTH: Most children with Down syndrome are born to older parents.
TRUTH: Most children with Down syndrome are born to women younger than 35 years old simply because younger women have more children. However, the incidence of births of children with Down syndrome increases with the age of the mother.
MYTH: People with Down syndrome have severe cognitive delays.
TRUTH: Most people with Down syndrome have cognitive delays that are mild to moderate. Children with Down syndrome fully participate in public and private educational programs. Educators and researchers are still discovering the full educational potential of people with Down syndrome.
MYTH: Most people with Down syndrome are institutionalized.
TRUTH: Today people with Down syndrome live at home with their families and are active participants in the educational, vocational, social, and recreational activities of the community. They are integrated into the regular education system and take part in sports, camping, music, art programs and all the other activities of their communities. People with Down syndrome are valued members of their families and their communities, contributing to society in a variety of ways.
MYTH: Parents will not find community support in bringing up their child with Down syndrome.
TRUTH: In almost every community of the United States there are parent support groups and other community organizations directly involved in providing services to families of individuals with Down syndrome.
MYTH: Children with Down syndrome must be placed in segregated special education programs.
TRUTH: Children with Down syndrome have been included in regular academic classrooms in schools across the country. In some instances they are integrated into specific courses, while in other situations students are fully included in the regular classroom for all subjects. The current trend in education is for full inclusion in the social and educational life of the community. Increasingly, individuals with Down syndrome graduate from high school with regular diplomas, participate in post-secondary academic and college experiences and, in some cases, receive college degrees.
MYTH: Adults with Down syndrome are unemployable.
TRUTH: Businesses are seeking adults with Down syndrome for a variety of positions. They are being employed in small- and medium-sized offices: by banks, corporations, nursing homes, hotels and restaurants. They work in the music and entertainment industry, in clerical positions, childcare, the sports field and in the computer industry to name a few.
MYTH: People with Down syndrome are always happy.
TRUTH: People with Down syndrome have feelings just like everyone else in the population. They experience the full range of emotions. They respond to positive expressions of friendship and they are hurt and upset by inconsiderate behavior.
MYTH: Adults with Down syndrome are unable to form close interpersonal relationships leading to marriage.
TRUTH: People with Down syndrome have meaningful friendships, date, socialize, form ongoing relationships and marry.
MYTH: Down syndrome can never be cured.
TRUTH: Research on Down syndrome is making great strides in identifying the genes on chromosome 21 that cause the characteristics of Down syndrome. Scientists now feel strongly that it will be possible to improve, correct or prevent many of the problems associated with Down syndrome in the future.
OK so I had today's post all thought out and look it's 10:45pm and I'm just getting started, but hey I'm not late yet. I have decided Wednesday's are gonna be photo days hence the name of the post. You know its the middle of the week and all and who doesn't need a dose of cuteness to get through the rest the week :)
Kayde is nearsighted and glasses shopping is what we have been up to!!! We picked up his Mira Flex glasses yesterday, but there just not working for my boy. Bummer kinda, as they are so ideal for him and where his at, but he has inherited my long eye lashes and the lens are just to close. On the plus side I Love is Erin's world we've ordered even more and can't wait to show you and tell you how there working out next Wednesday but for now here he is in his Mira Flex's.
I remeber after I was given kayde's diagnoses, some would tell me its OK to grive the baby you didn't get. Don't get me wrong I was bomb-barded and flooded with many emotions, but that never sat well with me. What did they mean?? Why would they say that?? They were wrong, I didn't feel I didn't get what I wanted. In fact I got what I asked for. A healthy lil 3lbs peanut who with what could of been alot of odds against him, came out at 30 weeks and even gave me a lil cry as if saying I'm ok mommy. Breathing on his own,THRIVING from day 1. With 10 lil fingers and 10 lil toes. How didn't I get what I wanted, He was and IS Perfect. I guess for me I greived the Diagnoses, the fears and the unknown. This poem is how I feel. ~ author Unknown ~
When you were but a tiny speck deep within my womb something happened to your cells ...as life began to bloom
a chromosomal anomaly is what the doctors say but you are EXACTLY what I asked for each night as I would pray
"Dear Lord, send me a happy child who will not grow up too fast," for I love the joys of childhood and I wanted that to last.
'Send me a child who sleeps all night and doesn't often cry, a little boy with endless love and a willingness to try."
That little extra chromosome that number 21 gave me all I ever wanted YOU - my precious son.
Having a child with Down Syndrome is nothing to grieve. If I knew what I know now..I would not have let so many tears flow from my eyes. I would have spent less time worrying and more time just enjoying him, like I do now. My son is something to celebrate!!!! ♥
Last year my 1st post for 31 for 21 was the " Welcome To Holland" poem by: Emily Perl Kingsley. It was so fitting as I was just in the beginning of Kayde an I's journey in " Holland", and with that brings me to today's 1st post. (the short version).
Today I am writing about my feelings, thoughts and my reality of being in "Holland"
19 months into this journey, I must say "Holland" on a whole for the most part is not a bad place,Since landing I'm a completely different person. Different in the best ways. I never imagined how greatly my life would change, I find myself the happiest I have ever been and for that I thank my son Kayde and his lil extra. For those of you that know me have heard me say, my peanut has taught me more in 19m then some learn in a life time. He has changed me and taught me alot about myself and for that I am a better person. He has taught me that I am a Researcher/Teacher/Educator/More educated /PT,OT,SLP Therapist,Learner /Medical Language Learner (lol)/Doctor,Learner ( in a sense it is me educating some of them)/Advocate/Learner/ He has changed the way I look at life/ He has changed what matters to me in life/ He has shown me to slow down and enjoy the little things/He has taught me I am stronger then I ever knew I could be/ He taught me the true meaning of unconditional LOVE/He has made me part of a wonderful community are just a few of some of the things Kayde has taught me. I could go on an write and write what I have learned from my peanut in such little time, and I will but Here is a video called Trisomy 21 Speech which for me sums it up just perfectly!!!
I guess the best way for me to explain my reality and how I look on this journey, is like this. " Holland" In many ways is the same as "Italy" We live/learn/love/play/feel/succeed/ etc, all the same. Just in different ways. No different then the differences we live, living among different cultures or the basic differences in each and every person. In "Holland" my child lives/ learns/loves/plays/feels/succeeds like a child in "Italy", Just in more steps, BUT my child WILL live/learn/love/play/feel and succeed. Couple of the hardest realities for me in "Holland" is the harsh reality of closed minded people/ society. People/ Society that see's "Holland" as not "Perfect" an life worthy. { When you see 1 Kayde there's 9 you don't}, A Society/ppl who have such low expectations for "Holland". A Society that in 2012 can't see everyone as EQUAL. Personally in my 19m journey I have only had a few negative experiences, a few is too many. But I am proud to say, I handle them with class and hit them with a bunch of true real facts about "Holland" and hopefully made them think or even changed there minds of what they think of "Holland".I guess what I'm saying is weather you are in "Holland" or "Italy". Everyone has good/happy and bad/hard days. In my "Holland" the good/happy days defiantly out weigh the bad/hard days.
As for my thoughts about my "Holland", Honesty, to keep it short and get to the main points is YES I have lots of worries, fears, questions and I'm sure my handful of obstacles to over come.But Again I find myself back at doesn't everyone have these fears about there own lives or their child's. Weather in "Holland" or "Italy"
LIFE:
My feelings/reality and thoughts of my life in "Holland" is I am TRUELY happy, and nothing could have ever made me not choose life for my son who happened to be born with a little extra. With all the extras he has brought to my life. I feel I have won the lottery!!!
It is our month to raise awareness!!!! I will be taking the challenge again of blogging everyday something about our lives or just something in general about DS. I am excited and determined..and lately my boy is not making it hard for me to have things to write about..lol now if only the kids will give me the time. :)
I will join hundreds of others in the blogging community raising awareness in what we call 31 for 21. 31 days in Oct, 21 for 3 copies of the 21st chromosome. ( Trisomy 21/ Down Syndrome).
I look forward to this for so many reasons here are my top 5:
#1 To Advocate
#2 To Educate
#3 To Learn
#4 To Connect
#5 To Shamelessly Brag & Share Our Successes
My goal isn't so much as to put a blog out there everyday (though I would be super proud of myself) as it is, if I educate just one person on the truths and the reality of life with a child with Down Syndrome, then I have achieved what I was hopping for.
I hope over the month you will visit mine and many others blogs and take a peek into our lives and not to spoil alert you but life is more alike then not!!! :)
Yep already its that time of year, so quick summer is gone. Fall is coming and days and nights are cooling off. Time for pants and cozy sweaters, beautiful changing leaves, and fun fall activities. Along with daddy's favorite time of year... Football season!!!! Every Sunday from now till Super Bowl Sunday we will be watching football :) So for daddy we did a lil photo shoot to start off your 1st yr as a football fan!!!
I'm ready daddy!!!
This is going to be so much fun..
I'm so excited...
This is my tough guy game face, you like it daddy
It's good, I know right...
Hows my cheering face???
Priceless is my touch down face!!!!
Here's my seriously that should have been a penalty face
I'm awesome I know, I'm going to be a great football fan!!!
Oh yea, an daddy this face is for asking for snacks during the games K!!!
Oh my!!! Where did summer go? With summer coming to an end, I wanted one last fun weekend with you and your brother and sister. Off to cedar park (water park) we went. We had so much fun that we spent 2 days there!!! The weather was beautiful, hot but breezy. Couldn't ask for any better.
We arrived!!!
Your not to sure about the cool water..
French fries for lunch..
Hi-5 mom this is awesome
ugh mom can you leave my curls alone
What is this and why can't i grab it..
B.B can you help me grab this..
Come here mommy
Muah...( I love that you close your eyes, your so sweet)
Tonight was one of the scariest nights of my life peanut. Tonight I felt as if I saw your life flash before my eyes, I panicked and froze with fear while you choked, Shaking I recall flipping you over and pounding on your back, trying to get you to spit it up, every time I hit and lifted you, you loss more colour, the last time I flipped you and brought you back up to me your face was a bluish colour and your blood vessels were starting to pop. :( I thought I was gonna lose you, I screamed for daddy to do something, thank goodness daddy flipped you and gave you a good hit on your back and it came up and you could breath again, but with that came alot or what seemed to be alot of blood. When you spit it up it cut your throat. Shaking I grab you and we headed to ER to have you checked out. They said we did all the right things and that you would be fine, soft foods for a few days to let the throat heal. I don't know what would have happened with out daddy. Thank you daddy for being able to act. I am so very thankful you are alright and no more hard solid foods till all your molars are in. I love you to the moon and back peanut..
Well now that your a mover, you get into everything!!!! Mommy needs to double clean up at the end the night ...this is why! The other afternoon while you were taking a nap Milynn and I had some art/craft time. While cleaning up the markers one obviously got away and mommy didn't see it. Well the next morning while mommy was in the kitchen getting you breakfast, Guess what you found!!!
Look at you, you have this innocent face like mom I didn't do anything I just woke up!!! LoL I shouldn't laugh but I had to just smile to myself and feel good, your exploring your world and that humbles mommy :) But.. Thank goodness it was washable and non-toxic.
18 months old-August 29th @ 11am you became a mover!!!! You mastered to bum scoot forward, You have worked so hard to figure this out and you've done it.. WAY TO GO PEANUT!!!!
Here is the first lil video of you as a mover that very morning :)
I can't even being to tell you the excitement, the joy, the tears and the pride mommy was flooded with. You can do anything peanut when you work hard at it :) Mommy was cheering, crying,clapping and you just looked at me like WHAT mom, why are you being so crazy. Your sister was the cutest thing right beside you ecstatic jumping up and down cheering " Go Kayde Go" over and over..lol Yelling look mommy he doing it!!! When your BB came home and we told what you learned to do this morning he lit up with pride. He called you to come to him, you gave him your sassy grin and shook your head No and spun around..lol BB pulled out his M&M's and said Kayde look num nums and you scooted right over to him. :) Mommy called everyone she knew and I'm sure a few of our neighbours heard the news too!! I can't tell you how happy I am for you to have mastered it. Your world just opened up and got alot bigger there's so much for you to explore and learn.. Let's go peanut and explore together!!!
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