Oh how I love this boy....:) Kayde is now 9 1/2 months ( 7 months adjusted ). So everyone knows kids set there own time line on when they are going to do things an learn new things, that I know yes. An yes Kayde will get there on his own time too, that I also know. He is doing great don't get me wrong, an is amazing and I am so proud of him. He works very hard everyday. I am reminded all the time he will reach his milestones just a little later then others. So I have tried very hard to adjust myself to that, my big goal for Kayde is to be sitting independently for his birthday. Lately I have been feeling down and feeling like we are not going to reach that goal. I know we have a few months still and I also know he is not really 1 or is not corrected age 1 until end of April, I feel guilty for feeling it but I feel I will be disappointed if he is not, not disappointed with him but disappointed within myself. If that makes sense??
Kayde and I have been working very hard developing core/trunk muscles. Lots of sitting on floor supporting hips and back, sitting on exercise ball rocking all directions working against gravity, also using Bumbo with tray. Last week at PT our therapist recommended using a block for Kayde to weight bear his hands on, so he wasn't bent right over looking at floor. OMG what a difference, an of course it would be but I had never thought about it. So need-less
to say it has done wonders with Kayde in just 2 weeks. He has reached his all time record as of yesterday sitting 45 sec all on his own weight bearing on the block in front of him....YYYYYYAAAAAAYYYYY!!!!! I can't even begin to tell you the joy I feel for this small but big progress forward. To see my lil man sitting looking up at me with that whole face smile knowing mommy is so proud of him..:) is priceless. I know as each day passes Kayde is gonna get stronger and better and my goal for him suddenly doesn't seem so far away. Kayde from day one has been the boss of himself when it comes to what he is gonna do, how he's gonna do it and when he's gonna do it and I should know by now just as I think other wise he proves me wrong every time. :) Thank you for that Kayde.
Tuesday, December 20, 2011
19 Reasons Why Mothers Of Special Needs Rock!!!!
I did not write this...but wish I did.
1. Because doctors have told us the worst, and we've refused to believe them. TAKE THAT, nay-saying doctors of the world.
2. Because we’ve discovered patience we never knew we had.
3. Because we... are willing to do something 10 times, 100 times, 1,000 times if that’s what it takes for our kids to learn something new.
4. Because we never imagined that “doing it all” would mean doing this much. But we do it all, and then some.
5. Because we have bad days and breakdowns and bawl-fests, and then we pick ourselves up and keep right on going.
6. Because we gracefully handle the stares, the comments, the rude remarks. Well, mostly gracefully.
7. Because we manage to get ourselves together and get out the door looking pretty damn good. Heck, we even make sweatpants look good.
8. Because we are strong. Man, are we strong. Who knew we could be this strong?
9. Because we aren’t just moms, wives, cooks, cleaners, chauffeurs, women who work. We are moms, wives, cooks, cleaners, chauffeurs, women who work, physical therapists, speech therapists, occupational therapists, teachers, researchers, nurses, coaches, and cheerleaders. Whew.
10. Because we work overtime every single day.
11. Because we also worry overtime, but we work it through. Or we eat chocolate or Pirate's Booty or gourmet cheese, which aren't reimbursable by insurance as mental-health necessities but should be.
12. Because we are more selfless than other moms. Our kids need us more.
13. Because we give our kids with special needs endless love, and then we still have so much love left for our other kids, our husbands, our family. And our hairstylist, of course.
14. Because we inspire one another in this crazy blogosphere every single day.
15. Because we understand our kids better than anyone else—even if they can’t talk, even if they can’t gesture, even if they can't look us in the eye. We know. We just know.
16. Because we never stop pushing for our kids.
17. Because we never stop hoping for them, either.
18. Because just when it seems like things are going OK, they're suddenly not OK, but we deal. Somehow, we always deal, even when it seems like our heads or hearts might explode.
19. Because when we look at our kids we just see great kids. Not "kids with cerebral palsy/autism/Down syndrome/developmental delays/whatever label."
Thank you to whom ever this piece belongs too!!! Great job.
1. Because doctors have told us the worst, and we've refused to believe them. TAKE THAT, nay-saying doctors of the world.
2. Because we’ve discovered patience we never knew we had.
3. Because we... are willing to do something 10 times, 100 times, 1,000 times if that’s what it takes for our kids to learn something new.
4. Because we never imagined that “doing it all” would mean doing this much. But we do it all, and then some.
5. Because we have bad days and breakdowns and bawl-fests, and then we pick ourselves up and keep right on going.
6. Because we gracefully handle the stares, the comments, the rude remarks. Well, mostly gracefully.
7. Because we manage to get ourselves together and get out the door looking pretty damn good. Heck, we even make sweatpants look good.
8. Because we are strong. Man, are we strong. Who knew we could be this strong?
9. Because we aren’t just moms, wives, cooks, cleaners, chauffeurs, women who work. We are moms, wives, cooks, cleaners, chauffeurs, women who work, physical therapists, speech therapists, occupational therapists, teachers, researchers, nurses, coaches, and cheerleaders. Whew.
10. Because we work overtime every single day.
11. Because we also worry overtime, but we work it through. Or we eat chocolate or Pirate's Booty or gourmet cheese, which aren't reimbursable by insurance as mental-health necessities but should be.
12. Because we are more selfless than other moms. Our kids need us more.
13. Because we give our kids with special needs endless love, and then we still have so much love left for our other kids, our husbands, our family. And our hairstylist, of course.
14. Because we inspire one another in this crazy blogosphere every single day.
15. Because we understand our kids better than anyone else—even if they can’t talk, even if they can’t gesture, even if they can't look us in the eye. We know. We just know.
16. Because we never stop pushing for our kids.
17. Because we never stop hoping for them, either.
18. Because just when it seems like things are going OK, they're suddenly not OK, but we deal. Somehow, we always deal, even when it seems like our heads or hearts might explode.
19. Because when we look at our kids we just see great kids. Not "kids with cerebral palsy/autism/Down syndrome/developmental delays/whatever label."
Thank you to whom ever this piece belongs too!!! Great job.
Wednesday, December 7, 2011
DSA Christmas Party
I am so excited we went. It was our 1st time meeting other family's in our area. Until Sunday all you online mommas is all I knew, which has taught me so much and gotten me where I am today, I thank you all for your support/advice/ and your real life stories. I was truly needing some real interaction with other families. Feeling nervous and so excited at the same time the whole family headed off to the Christmas party. Deep breathe here we go...we were greeted instantly by (D) who earlier in week came out to meet us and had invited us. They had swimming 1st followed by singing and visit from Santa. Kayde loved the water, he was so cute splashing and laughing at himself. :) After swimming it wasn't minute's after entering the party area Kayde had every one's attention. Everyone was so welcoming and nice and just adored Kayde. I feel so very blessed to be part of the DS community it is surely full of wonderful people. I instantly connected with quite a few moms, it's so nice to have some one to talk to that truly knows how I feel and what we go through. I got lots of numbers/ email for future contact as well as quite a few babysitting offers...lol. It was a great experience for all of us. I can't wait to meet up with my new mom friends for play dates and chats. I left feeling so good and inspired.
All tired out after getting so many snuggles!!! Thanks mommies :)
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